An update on the data collected in the Spanish ALS Registry and the analyses under way, presented at the 3rd Meeting of the Spanish ALS Research Network (Zaragoza): descriptive characterisation and cohort-wide figures, cognitive assessments (ECAS), effectiveness of riluzole, real-world data on tofersen, and differences between autonomous communities.
A plenary-session oral communication at the ENCALS Meeting 2025 (Turin) on the cognitive profile of restricted ALS phenotypes — progressive bulbar palsy, flail arm and flail leg syndromes — using the National ALS Register of Ireland: why these slow-progressing forms are worth studying, a data-driven way to define “restricted” disease from the clinical record, what distinguishes these patients, and ECAS analyses pointing to comparatively stable cognition over time.
