A poster at the ENCALS Meeting 2024 (Stockholm) putting the Rasch-built Overall ALS Disability Scale (ROADS) and the self-evaluated ALSFRS-R side by side in real-world telemedicine data from the LinkELA app: how closely the two scales agree, how that agreement holds across King’s and MiToS stages, and the first hint that ROADS registers change the ALSFRS-R misses.
A platform communication in Basel, co-presented with Harry McDonough, mapping the natural history of ALS through a time-to-event analysis of clinical milestones in 21,547 patients across the pan-European PRECISION-ALS cohort — including marked differences between care centres in when gastrostomy and non-invasive ventilation are started — plus a poster on LinkELA, the telemedicine app we use to follow our ALS patients from home in Barcelona.
